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CWRU study gives first look at effects of cancer on survivors

Case Western Reserve University : 13 January, 2006  (Technical Article)
Many forms of cancer once left few survivors, but now more than 10 million people make it through this life-threatening illness. But nearly 40 percent of cancer survivors continue to view themselves as victims and many are reluctant to talk to others about their illness experience.
Information from the first of three rounds of interviews Case Western Reserve University researchers conducted with elderly white and African American survivors of breast, prostate and colorectal cancer has yielded one of the first looks at how the disease affects older Americans.

Gary Deimling, a sociology professor at CWRU, directs a research team of a five-year, $1.4 million National Cancer Institute research project, called 'Quality of Life of Older Adult Long-term Cancer Survivors.' It is one of the few studies that also examines racial differences in the impact of cancer.

At national gerontological meetings, the project's researchers have presented seven papers about their findings on how surviving cancer shapes the physical and emotional lives, relationships and self images of older Americans.

'This is the first time many survivors have had someone sit down with them to hear the stories of their illness experiences,' stresses the researcher.

The study's team includes some of CWRU's leading experts on aging, including co-investigators Eva Kahana, CWRU's chair and the Pierce T. and Elizabeth Robeson Professor of Sociology; Kyle Kercher, associate professor of sociology; Julia Rose, assistant professor of geriatric medicine at the School of Medicine; Kurt Stange, professor of medicine, sociology, and epidemiology and biostatistics; and Karen Bowman, project director and senior research associate in the sociology department. Boaz Kahana from Cleveland State University is the project's co-principal investigator.

Interviewed in the first round were 320 participants who had been treated at University Hospitals' Ireland Cancer Center in Cleveland. They ranged in age from 58-95, with survival rates from slightly less than five years to 34 years. About 60 percent of the survivors are women, and about 40 percent are African-American. More than 70 percent were diagnosed with cancer between the ages of 50-70.

The research team plans to complete two more interviews with all survivors, a substantial number of whom have had other forms of cancer, and other significant health problems and life events.

Here are some of the findings:
Only 2 percent have clinical levels of Post Traumatic Shock Disorder, although between 7 and 31 percent report mild or moderate individual symptoms of distress, such as feeling that their future is 'cut short' or not wanting to talk about the experience, Survivors report that while cancer is now an important part of their identity, it has not fundamentally changed 'who they are'
Some 20 percent say that cancer has changed the way they relate to others, More than 40 percent become anxious when talking to others who have cancer
A majority of survivors report that since treatment, their families felt hopeful for the future
Those who felt that they were a survivor early in the illness have had better long-term mental health outcomes
The majority of survivors did not feel that having cancer or its treatment affected their current health, and they typically rate their health as good or excellent
The study also compares the experiences of African-American survivors with those of white survivors:

Compared to African-Americans, white survivors were twice as likely to report their families being distressed at the time of treatment, and were more likely to report that cancer disrupted the family's daily routine
When compared to whites, African-American survivors were less likely to define their cancer experiences as stressful life events or worry about a recurrence of cancer when compared to whites.
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